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Allo Maladies Rares est une plateforme d’orientation à la disposition des patients, des professionnels de santé et des institutions.
Allo Maladies Rares est organisée sur le mode d’un « Guichet Unique » pour permettre à chacun de disposer d’informations précises et d’une orientation efficace auprès d’une équipe expérimentée et dédiée précisément à la pathologie en cause.
Ses actions sont structurées autour de 11 axes dont :
- Réduire l’errance et l’impasse diagnostique.
- Promouvoir l’accès aux thérapies innovantes.
- Favoriser la recherche et l’innovation
